NEW ZEALAND ORGANISATION FOR RARE DISORDERS

NZORD is a registered charitable trust (Charities Commission registration CC22512) that was set up in September 2000. NZORD welcomes the full extended (patients, family, friends, clinicians and researchers) rare disease community as well as the common disease community by providing support, resources, advocacy and engaging in policy matters that affect the health of all New Zealanders. The NZORD website offers a central starting point for patients and families affected by rare disorders, and helps families and patients to find essential information as they journey through the health and disability system.

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