HEMOPHILIA FEDERATION OF AMERICA

HFA serve as a consumer advocate for safe, affordable, and obtainable blood products and health coverage, as well as a better quality of life for all persons with bleeding disorders. HFA’s ongoing consumer advocacy agenda includes product safety, as well as accessibility, affordability, and availability of the products the individuals of this community require. Based in Washington, D.C., HFA works in conjunction with other national and state organizations on behalf of those who have bleedi... ng disorders. Its officers and staff maintain a highly visible presence, representing the bleeding disorders community on Capitol Hill and speaking regularly before the Food and Drug Administration, Centers for Disease Control and Prevention, and other key agencies. HFA strives to educate the community and provide tools that give the community a voice at state and federal legislatures. HFA consists of a national office and organization plus >30 community-based organizations made up of numerous men, women, children, moms, dads, siblings, grandparents and friends impacted by a bleeding disorder. Additionally, many non-affected individuals and organizations such as healthcare providers, sponsors, donors, specialty pharmacies and insurers play a significant role and have a stake in the community. HFA member organizations across the country utilize HFA’s collaborative federation to strengthen community support and awareness, develop effective local organizations, and implement valuable community-based programs. These programs include a wide range of adult outreach initiatives, as well as broad-based support for families with bleeding disorders / hemophilia.More